Things have been much better over the last few days. I am getting so much needed help from Rick and family. It truely takes a village to raise these kids. The boys have been feeling pretty good in the last few days.


Got some REALLY great news...........


Any guesses? No I am not pregnant. Bite your tongue.

Well Mr. Avery FINALLY gained. Would you believe he weighs 18 lbs. Yay. Wooohoooo.........

He has not gained even a pound since Jan. and now he has finally gained. So seems the j-tube is doing it's work. He still vomits 2-3 times a day but he is gaining. Remember I said earlier that he was acting bizarre and I thought it was his new med. Well I was right. He was having a reaction to it. This is his 3rd med. he is allergic to. Go figure.
Tomorrow I am meeting up with 2 other families with kids with mito. My caseworker hooked us up. We talked and really hit it off. Her soon will be 5 and she invited our family to their huge bash. I am excited to personally meet other families who struggle with this horrible disease. I will post some pictures. Speaking of pictures, here are some random ones of the kids and the house.