I am already behind on my postings, sorry. That for now means that things have been pretty quiet lately. The boys still have c diff which can take a while to clear up, which means that Avery will not get his cochlear implant until at least the end of August. Janessa is going to the beach with her grammy for about a week. I don't think her or us will make it that long without her. I am thinking Monday she will be home.

Today with the absolute highlight of the week or even few weeks. This was the first happy drs. appt. we have ever had. Isaiah went to the Augmentive Communication clinic which is basically a place that works with a speech therapist and occupational therapist to help give him a form of communication which he so desperately needs. He is SO SMART. He blew the therapists away with how quickly he caught onto things. He is able to make consistent choices about what he wants by hitting a switch that talks. Me and my nurse were in tears b/c he is just so amazing. I can't wait to get him started on a means of communicating. There is no ceiling for this boy and his laughter just brings tears to your eyes. He is just the sweetest guy I know.

Our New House

Here is our new house. The inside is gorgeous with an inground pool, very updated and the basement is let's say "adult haven" . Great neighborhood. Very close to much shopping.

By the way, this is not our stuff in the house. We have not moved in yet. Definitely not my taste.

Stuck in the house again

Yet another Sunday, where I am housebound with the three kids. Rick is gone all day and night for camp stuff. It is a beautiful day out and can't get out with the kids. Janessa is already bored stiff and the boys are their typical rolling wildmen. I really hope the move alleviates this being trapped in the house all of the time. I just feel so bad for Ness, she nobody to play with and she can't even swim in the pool b/c it is too hot for the boys to be outside. Just venting today. Oh yes, and I can't even start packing b/c the boys are so much work and require TOTAL care. So pretty much a wasted day.

Bummer yesterday. Both Avery and Isaiah have c-diff which is a bacteria infection. Hopefully this explains some of their GI issues. God knows how long they have had it for. Well Avery was scheduled for his cochlear implant surgery on Friday but it is now cancelled b/c of the infection. I am actually not too sad b/c this added surgery just adds too much stress right now with the move and everything.

So yesterday we had a surprised 40th birthday party for my best friend. She is so darn hard to surprise just because she is so nosy. But we had a ball. Happy 40th Chris. I will post pictures soon.

Stressed Out

Wow, talk about stress lately. Things are so unbelievably crazy these days for us. We are moving as you all know in 4 weeks, the boys have drs. appts. 2 days next week at Childrens's, Avery is getting cochlear implant surgery next Friday, we have an event on Friday, a wedding on Sat. and Rick has basketball camp all next week. And we just got a call from the GI dr. at Children's, apparently Avery has a bacteria in his stool which may be causing some of his issues lately but she is also concerned that his new j tube is displaced thus causing his recent vomitting again. We are now also worried that Isaiah has the same bacteria and now has to have his stools tested. AHHHHH. As my husband says, when are we going to catch a break.

You could never fathom a life with sick kids. Luckily I have an ADHD personality and am usually happy go lucky b/c plain and simple, it is really the hardest job you can imagine. There are no breaks. What I do or don't do directly affects the survival of my boys. That is a huge responsibility. I swear, I have not had 1 single week go by where I have not had to talk or see a dr. since Isaiah was born and I honestly don't think it will ever end. This is why my cell phone bill is so high. I am either make an appt. or talking to a dr. Well this is my vent for the day. Thanks for reading.

“I can't change the direction of the wind, but I can adjust my sails to always reach my destination

So it is Monday. Have you ever had one of those days when you felt like you have done so much but actually got nothing accomplished. You know what I am talking about. Well today was one of those days for Rick and I. Everything was back to business b/c so much was put off b/c of Avery hospitalization. I had a very busy work schedule. Had a ton of errands to do but was not able to do any of them b/c work was so busy. Rick also had a similar day.

On a negative note. The sellers of the house we are supposedly buying frin and moving in a couple of weeks is being a real *****. She is not will be budge on any repairs that are needed. The thing is that we both really love the house. So what can you do. I guess we will keep you all posted as to how it will turn out.

Do not judge, or you too will be judged. For in the same way you judge others, you will be judged and with the measure you use, it will be measured to you (Matthew 7:12).

For I am the Lord, your God, who takes hold of your right hand and says to you, Do not fear, I will help you (Isaiah 41:13).

FATHER'S DAY

So it was Father's Day today. I am so happy that my husband had a great day today. He really deserves it. Me and the kids unfortunately were stuck in the house all day because we have no nurse. The boys do not do well in the heat at all. Frankly, it is just too hard to go out with all three kids by myself. It can be really depressing. BUT on the big plus side, we are moving in 30 days closer to family, our jobs and much needed help. This is dramatically affecting our lives in such a positve way. Me and my husband will have more time together. We are moving to a great town with better services for the boys. Very close to shopping which is a huge plus. Overall a great move. But I will be really sad to move away from some really close relationships that me and daughter have made. Change is good at this point.

Tomorrow is back to business for me and my husband. Lots of catch up work to do since Avery was in the hospital for 10 days. SO much to do in such little time.

HAPPY FATHER'S DAY

DADDY WE HOPE YOU HAVE FUN AT THE RED SOX GAME TODAY. LOVE JANESSA, ISAIAH AND AVERY. THE BEST DADDY IN THE WORLD.

I am so excited about this blog. What a great idea. Today was a great day. Avery came home from the hospital. Yay. We now have to get used to his new schedule. He will not be getting fed 24 hrs. a day on a feeding pump through what is called a j tube. It is a tube that is inserted into his lower intestines to help him better digest his food. Hopefully he will be packing on the pounds now.

Spent some really quality time with Janessa today. A friend from our church was so generous and gave us a mommy and daughter nail appointment today. Janessa loved it and we both enjoyed time together finally. Just the girls day.

So tomorrow is Father's Day. I got my husband the best gift yet. RED SOX tickets for tomorrow's game. He is so very excited and I am very happy for him. Enjoy DADDY.

Okay so to catch everyone up on what's going on. Let's see. First of all we are moving out of the area in 4 weeks and have not done any packing for planning for the move at all. Mainly because both boys have been hospitalized recently. Isaiah was hospital mid May for a week then we sold our house and bought one and now Avery has been in for over a week.

Sounds crazy to most but this is just a day in the life of the Nault family. Although, I did have a breakdown the other day because I work four days week and have missed alot lately b/c of hospitalizations. I finally had to go to work and Avery was getting a procedure that day. I was late to work and got just about there and I just could not go into work. I called work and had a breakdown. It is just all too much so times. I cannot do it all. Sometimes I have to pick and choose. That day I chose my sanity. I prayed and feel much better now. I am a very strong and happy person usually and my faith is really the reason why I can handle so much but I do still have bad days.

Hopefully, Avery will get out tomorrow and I can start thinking about moving to our dream home. I think we are going to be so happy there. I just cannot wait to get settled.

So this is my blog. Yay. Gosh our family life is so crazy and always a story to tell. This is a really great way to get it out without any judgement. It's mine and I can do what I want. Well for those of you that don't know us.

I am mommy of 3 very special kiddos and a great husband. I have Janessa you is 6 yrs and very beautiful and witty and God gave us her first in preparation for what was to come. Janessa actually means gracious and merciful. She is just the fire in our life that we need. So intuitive and loving and basically everything we imagined in a daughter.

Next is Isaiah which means gift from God. He truely is with all of his challenges. He is the sweetest sole I know. Isaiah was diagnosed at 5 mos. old with mitochondrial disease. He is 100% tube fed, deaf but has a cochlear implant, nonambulatory but a wild rolling man nonetheless. He suffers from CVS which is basically migranes which causes him to wretch horribly. But when he feels good he is the happiest little character there is.

Last but not least is Avery which means courageous. He is what we call the primadonna of the family. Also very handsome with his killer eyelashes and curly cues and a smile that lights up a room. Avery also suffers from the same illness as Isaiah. He is certainly a fighter.

Then there is the main man in my life, Rick aka daddy. Only the greatest most generous guy I know. He gives so much to others and mostly his family. I could not be more happy for him as he is living his life dream which is his job. He is a high school basketball coach and a teacher. Now that may sound like, okay, and, but the is coaching for a very prestigious school with some kids who are underprivelaged and still this man is completely amazing and dedicated to what he does. And this is why I love him. He is as dedicated to his work as he is to his job because that is the type of man he is.

So the there is ME. Nicky. Well what can I say. I think that I am a good hearted fun loving, hard working, great mom who just tries her best. Yes of course I have faults (which I know every single one of them) but, I have come from a very tough upbringing with a dad that was murdered and living on the streets to growing up in the projects on/off welfare. To a girl who has earned a masters degree by age 23 as an Audiologist. I have been dealt this hand which is a blessing by can be VERY difficult. I am strong and very positive but am human and have some bad days as well. I love to have fun, laugh, hang out with the family.

So that is the introduction into the Nault family.