There truely is NEVER a dull moment in our household, lol. Me and Janessa were on our way home from hip hop when "WHAM" we get hit from behind. Meanwhile, I just realize we have been hit and Janessa is screaming like a wild woman. I honestly thought she was missing an arm or something. But no, just Janessa being Janessa. She starts screaming "Call the cops" I could not help but laugh. Bad mommy. So I then get out of the car to figure out what happened. I was coming off a ramp and stopped b/c traffic was too heavy to merge, apparantly two cars behind me did not get the message b/c he hit someone who hit us.
Luckily I have such a great husband who took care of ALL the details. I just basically dropped off my van today and got a rental and my van will be ready sometime next week. I honestly could not handle doing this right now so I am glad he took care of everything. Such a good guy :)
Isaiah is still recovering slowly from his cycle. Hopefully tomorrow he will be back to himself. Avery has been very happy. In fact, I think the new med for his gallbladder is actually making him sleepy. Not necessarily a bad thing. He slept through the night on Sunday for the first time since God knows when. Yay for sleep. He is like a different kid for the better so I am wondering if his gallbladder is what was causing him pain. Either way, I am happy. It is just great to see him laughing so much.
More good news is we have been able to increase his j feeds to 14 cc/per. Yeah, I know it is not a whole lot. One ounce is 30cc so that means he is tolerating almost a half ounce an hr. It is my goal to keep increasing as much as we can so we can decrease his TPN and decrease all the complications with TPN (IV food). It may or may not last but we are certainly going to keep trying. The risks of being on TPN fulltime longterm are far too great. So I am hoping to keep his gut moving.
Also got his official IEP homeschool plan in. Lets just say it is worse then I remember it to be. Basically a joke.
More good news. It's going to be a great Mother's Day. We are going to the Red Sox. Wooohooo. Going to enjoy all this good news while I can.
Hope everyone is well. Thanks for reading.
4 comments:
Love the good news! Enjoy your Mother's Day, Nicky! You deserve it!
So happy for you that Avery, and you I hope, are getting some sleep. you sound happy! Pretty good for someone that just got rear ended, on top of everything else! Love to all, sleep well! Alison.
Hello!
I found your blog and wondered if you had heard of the Oley Foundation yet.
We offer free information and peer support for families like yours with a member on home tube or IV feeding. Check out our website at www.oley.org.
In particular you might be interested in the
• Meet Patients Section (try all three links)
http://www.oley.org/volunteers.html
http://www.oley.org/call.html
http://www.oley.org/forum.htm
• Oley's annual conference -- where you can learn a lot about tube and IV feeding and meet other families facing similar challenges. Preliminary details are posted now, but keep checking for updates at http://www.oley.org/2009_Annual_Conference.html
There are travel scholarships for first time attendees.
If you have any questions or would like to be introduced to another family, feel free to contact me.
Warm regards,
Roslyn Dahl
Oley Foundation Staff Member
dahlr@mail.amc.edu
(800) 776-OLEY
p.s. GO RED SOX!!!!!!
Hope you & Janessa are ok today. Glad Avery is sleeping better for you and him.
ES
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