We are home and oh so grateful to have lights and heat. We are one of the very few neighborhoods around to have power. Thursday evening there was a pretty bad ice storm and damage to many homes. We were sooo lucky to have snuck under the radar. Otherwise Avery and I would still be in the hospital. I have no idea what we would have done with Isaiah and Janessa. I am praying for all the families that are without power.
Poor Isaiah has been pretty sick all week. He has a pretty bad cold and I am worried it will turn into a pneumonia. I have never seen him sick like this, it makes me nervous but he is such a trooper. I will be bringing him to the drs. in the morning. I am a bit paranoid about Avery catching it as well.
Okay this whole TPN stuff is soooo overwhelming. Mainly because he has c-diff again and c-diff and a port accessed (meaning the IV to his heart is exposed) is a VERY bad mix. He usually wakes up in the morning covered in poop, so this is VERY nervewrecking. I am so scared that he will get a line infection b/c of the poop. Also I am overwhelmed by all the calories we need to get into him. It is not realistic at all and he just will not tolerate all this feed. I just cannot believe that such a little guy requires THAT much food.
I swear I didn't sign on for all this. I just feel like I am drowning this week. I am sure things will stabilize but for right now, they are overwhelming. Also I am stressed b/c I missed a week of work and have so much catching up to do.
The goal is to get Mr. Avery tolerating his tube feeds so we can get him off the TPN b/c the risk of infection is too high for my liking. Hope everyone is well and thanks for reading.
Oh I will have to post pictures tomorrow of the tree Janessa picked out. Let's just say it is just as big as I am and we all know he big I am not!!!!!
5 comments:
Wow Nikki, that all sounds very overwhelming. I hope the C. Diff does not cause a problem for him and that you'll be able to find a way to get all the calories in. Isn't it amazing how many calories they supposedly need? I think most kids can live on much less. I know Emeric does!
Take care!
Hey there! When you say you are overwhelmed, it must be overwhelming. I still think you are superwoman. Sending many "heal your gut" thoughts Avery's way and "get better soon" thoughts Isaiah's way.
Sending you peace and light, Nena
I'm praying for your continued strength and the health of your sweet babies, Nicky. *hugs*
You and the boys are so often in my thoughts. It is a strange language of procedures and things that is part of your life. Reading it is overwhelming, so living it must be unthinkable. You are one strong lady.
Hugs to all of you,
Susanna
Hey Nikki, so glad you and Avery are home from the hospital, and everything seems good so far. Sorry Isaiah's been sick. That sucks for him, Poor guy.
Rick, it was so nice to see you and Janessa at BCA the other day. You guys looked great.
I'd love to bring the kids up for a visit some day, but you guys always have so much going on, it's hard to think when would be good for you, and not just a pain in the arse! If you think it might be fun, let me know. maybe some time over vacation? I understand if you just want to spend it relaxing with you family, but I wanted to throw it out there in case. We could bring Pizza and a movie or something? or something else fun?! I'm open to suggestions. I'm sure you need a good chance to get back home and get everyone settled again first, andyway.
Enjoy the run up to Christmas. It's almost here! Yikes!
Love Alison.
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