We are finally getting some sleep around here. Thank GOD. The melatonin seems to be working. Avery is less fussy which is always a plus. Developmentally, we are not seeing any improvements. He still just lays in whatever spot you put him in. It is just really sad to see this once active little boy be just a lump. I swear it is as if he has had a minor stroke. He CT scan looked normal but if you saw him in person from where he was a month ago, you would notice a huge difference. I am still optimistic that he will slowly get these skills back. He is smiling more which is always great to see with his full set of teeth and that beautiful curly hair. Please pray that my baby will regain his skills. He is so much more delayed at this point than Isaiah ever was. Granted he has been through far worse medically than Isaiah but in it seemed as though Isaiah was more physically handicapped but looks like Avery has taken his place. You just can't imagine what it is like to have 2 kids that will or may never but WILL being the reality, walk, talk, or lead any sort of a normal life. You can never think to far in the future b/c it can be very depressing if you do. They are only getting bigger and more difficult to handle physically. I just cannot believe that I will have to have a van with 2 wheelchair tie downs. That has not quite hit me yet. I will be changing poop for ever. UGH....
Most of all, I just do not want these boys to have to suffer with pain. I just want them to be happy. They are just luvabugs and are here on this earth for more reasons than I can count and continue to bless us everyday. I just always want to know that they are happy, feel good, and know that they are loved.
BTW...I never know what I can going to write about until I start typing so some of it may sound redundant, sappy, depressing or a number of other things but it is just ME.
Please continue to pray for Marlo that I have previously written about and another little guy Ashton who is also having a difficult time right now. Thanks for reading.
1 comment:
I'm glad Avery is finally getting some rest. I hope that some of his skills return. I know how hard it is to see them go. Always thinking of you and your family.
Debbie White
On, Canada
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