Update Finally!!

To say it has been a long and draining week is a complete understatement. So when I last posted, I was on my way to the ER w/ Avery. Just 2 blocks away, he starts vomitting out of nowhere. I have to pull over and reposition him so he does not aspirate. But at the same time I have to get him in. So I proceed to drive in while he is still vomitting. Pulling into the ER with valet helping me in and run into the ER w/ him still vomitting then have to put him over a trash can for yet more vomitting. Mind you this is not the reason we are checking it. It was actually a planned admission for the CT scan. So anyways, check in and get settled, he is already dehydrated from vomitting. They do a simple unsedated CT scan which seems to be okay. We finally get into a room at 1am for which they take more blood from him.

Then the fiasco begins. He CO2 level is dangerously low requiring him to go to the ICU for immediate treatment but I know that this level is not right b/c he looks okay to me and tell them they need to repeat it b/c they were also going to cancel the special CT scan for which I knew was most important and the whole reason why we were admitted. So drs. are in a panic and get the lab to repeat the level, and what do you know.... It was fine. So the CT was back on.

The sedated CT goes very smoothly. Back up to room and dr meet with me with the results. This is where is goes downhill. The CT shows that his left internal jugular vein is totally occluded, meaning that blood flow is being restricted and backing up on the left side of his neck and face. Good news is no bleeding in the brain. Bad news is the treatments are too life threatening to proceed with. So the only thing we can do is keep him on the blood thinners long term and hope and pray that this major clot does not break off and cause either an aneursym, pulmonary emoblism or a stroke. OMG how shocking. Basically they just pushed us out the door literally today (which is a whole other story) and say well all we can do it keep in on the lovenox and keep checking to see if it gets better. Are you kidding me......

So my baby is a ticking time bomb. I hope and pray it never goes off. I have never felt so helpless in my life. My poor baby is just so lethargic and lost so many milestons of what little he had and I just pray that he is able to regain some back. Just really sadness for my little man. He has been through so very much and is just such a little fighter. You do know his name means COURAGEOUS. Had no idea when we named him but get it now.

Prayers are always welcomed.