Sooo, Avery slept a bit better last night, only up a few times but of course Isaiah cried out a few times and Janessa had a sleepover and her friend was in our room at 1am crying for her mommy. I would say cummalitively, I still did not get much sleep. Am I crazy or what with the sleepover. Although, Janessa had fun and I love to do things for her.

Avery started off the day looking okay. Still no energy but smiling. He is still not making any strides in terms of rolling or showing much interest in anything except being held over mommy or Carla's shoulder (his nurse). I do still believe he is in pain but I am thinking it is more reflux related as opposed to the clot now. He is waking up in the mornings with coffee grinds in his drainage bag which is from his belly. He is making alot of weird faces and kinda shakes like he has the chills KWIM? then his right arm will go straight up to his head, like a real infant type move. Something I have never him do before. He just looks weird with all these movements. It is like is has reverted back to an infant again at 20months old. Sad face!!! I will be calling the drs again tomorrow. I just might be back in the hospital again this week. This is certainly no way for my little man to live. Just heartbreaking.

Isaiah on the other hand is the funniest, craziest boy ever. He always give you something to smile about and almost takes away all the pain.