If you read my last post and the article then you will get this post...
That article has hit me in so many ways. It was so well written and truly describes what our life is like. You can't help but read it and shed tears. Most parents won't be dragon parent bc that's just not the circle of life but until or unless you are you will not know how difficult it is. We are our own culture. That being said, I have begun to realize how small Rick and my circle is of "true friends" are. I had not realized it until I got a call today about how many people would be attending a ceremony of one of my husband's greatest accomplishments. It was sad bc we cannot even fill a table. In fact both him and I got a phone call regarding how many people would be attending and it was the same amount ( not enough to even fill one table). Very heartbreaking!!! I would like to think that we are both great people who do alot for other ps while dealing with our own lives with always a smile own our faces. This is what my Dr. told me the other day. Yet where are all these people? What it comes down to is people are afraid of us and our lives. Many say they get it but the fact of the matter is that they DON'T and it is likely that they will not have to bury 2 kids.
I guess I'm just sad for Rick and myself bc at the end of the day it's just us. But no matter what, we got this and will continue to inspire others.
3 comments:
oh nicky....the article is as you described. please don't feel alone. we all want the best for our kids...but mostly that they are happy. love is the most important thing and you love your boys (&janessa) day by day, week by week and month by month. i think of you constantly. i will be there on 11/9.
sonya
i understand the isolation. i am only truly close to my sisters, and then other moms who have kids with mito.
The article is great. We'd love to be in your lives more. It's really hard to be there for you guys though, 'cause like any parent, you're busy, and tired and constantly on the go, except multiplied so many times over it's hard to imagine when you'd have time to hang out. I would just show up with the kids if I didn't think I ran the risk of being in the way/intruding. We're open to ideas and invitations though. Really! What's Ricks big thing?
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