It seems like I gave the impression we were back in the hospital. Luckily we were able to avoid the hospital this time around. Avery's fever was down to 101 by the morning. Today he was fever free. Weird. I am begining to think that it is related to his hypothalamus especially b/c he shows no signs of illness. So I guess I will not be alarmed the next time he get another high fever. He seems to be healing, sleeping at night is still sporadic even with all the meds. but during the day he is more happy and even begining to move both arms. Thankfully. We have GI appts in the am, hopefully we will have a good plan in place for Isaiah and one for Avery when in goes into the hospital with his typical GI issues. This will be a huge help for us. I am hoping to get rid of some of his medications b/c his list is just ridiculous right now. Friday we are seeing Neurology which not sure how much help this will be.

Rick has his last typical season home game tonight. It is senior night tonight and they are remembering Ryan who is a player that they lost this session. Unfortunately, I am not able to go tonight b/c I don't have nursing tonight. But it is nice to have a quiet night home. Janessa is at a sleepover tonight. So these moments are very few and far between and I have to completely enjoy them while I can.