Avery is Home

Children's felt the need yet again to send us home last minute without all of his meds being in place. I swear they wait until I leave which is usually the weekend and then tell Rick he can go home, yet they have not even got have of his meds. figured out to go home with. So they end up calling me 20x to try to get things straightened out. So needless to say, Rick and Avery just got home at 9:30 on Sat. night on a snowy night. Totally unacceptable. I will be calling patient relations on Monday b/c this is the second time they have done this. Unbelievable.

Basically I am just going to rant b/c we just spent 11 days there and I swear, they made my kid worse. They took him off the diet which has caused his lactate to go really high (which is not good at all) and then say that there are not alot of options to decrease his lactate. DUH, put him back on the diet. Now that have given him yet another formula for which he has been retching with. So they solve that by giving him antinausea meds. I just think they have no idea what to do with my kid. They cannot fix him so they experiment with him and since none of those worked they send ship us out the door with a ton of meds late Sat night. UGH. Does that make any sense. Just a waste of my and Avery's time. So we really got nothing accomplished and just added another slew of problems. I am just angry at this point and tired of always having to advocate. What has healthcare become.

We are just going to be home and hope things are uneventful for a bit so we can try to be a family. Avery is smiling but still not moving around. I just hope he sleeps, which I would hope so since they gave him Clonodin, klonopin, and ativan for sleeping. Geez. I will keep you all posted and put some new pictures up.