Since it's been over a week since I last posted and so much has happened that I don't even know where to begin??

Guess I will start chronologically.  Big storm came and again the Nault's were blessed with not losing any power at all.  Thank goodness.  As we all know,  I am total freak about that especially with my boys. However my heart goes out to all the families that did lose power and more.

 On 10/30 we would have left for Disney had I not cancelled the trip. Bittersweet really!!! Sad b/c of the realization of a family trip is just not possible and thankful b/c Mr. Avery validated why I cancelled b/c he ended up inpatient due to a 103.5 fever.  Thanks for the confirmation Av :)  At the same time, his alternative wish was perfect.  Avery skyped circle time for the first time this Monday and although the kids were not able to see him live but he still have a cute picture they were able to see, it was awesome.  Each kid said hi to him and Avery could see them and was cracking up laughing.  It was priceless :)

Thankfully, his inpatient stay was short lived.  He only spiked the one fever and actually looked and sounded the best he has in a very long time.  But b/c the fever was so high and he has a central line, it earned him a two day stay.  Which is not bad but I do have to say this being in the hospital every few weeks is killing me.  Honestly…

When I came home on Friday Janessa was sick with a sore throat and just looked dehydrated and coughing like crazy and Isaiah had been retching like crazy.  These kids sure know how to greet their momma.  She turned out the have something viral and Isaiah has been struggling more with his retching b/c he was lucky enough to get two weeks off :( poor boo boo.

During my stay at Children's I was asked by Palliative Care to do a focus group meeting with myself and 10 other Drs. from around the country about my experience with the Pact team.  As you all know that I am NOT shy and had NO problem talking their ears off.  It felt like 5 yrs worth of counseling for sure.  Just reliving everything our family has been with Avery was just a lot.  But it felt good :)  Of course they fell in love with me and Avery :) .. On a serious note, I think they got how difficult our life and all the decision that go along with it are and that we are just doing the best we can do.  I think I realized what a rock solid family we have.  Both Rick and I did not grew up with our share of difficulties but we have certainly made the best of what we have.  Our family is filled with love and I am so proud of that.

Speaking of being proud, Rick is being inducted into the Lawrence Boy's Club Hall of Fame tomorrow.  This is a very big deal.  The Lawrence BG is in the middle of a poor and struggling city that gives to so many kids and that includes my husband when he was growing up.  It is just an amazing place and was even featured on Oprah b/c of all the great work they do.  Rick is one of those guys that knows where he came from and is grateful and has given back to the community that has help him become the man he is today.  For that I am so grateful b/c he is the man that walks the journey with me no matter what.  Congrats babe!!!