This life is Never Easy

Boy did I feel the rath of that this week…

Monday: Work, work work, and hunting down Methadone at four different pharmacies b/c the script was ordered way too late and it is very hard to find it in liquid form and in the insane amounts that Avery gets. Thankfully, by 7p I got it filled and headed home to the craziness of the house. As you can imagine I was exhausted.

Tuesday: Work and then my in-laws got new carpeting we desparately needed b/c of the poopy Nault boys over the past 5 yrs. My only condition with the installers is that it HAD to be done while the boys are in school b/c it would just be too crazy to displace them.  Well low and behold that did not happen and it was crazy than EVER here. However, it was worth it b/c the carpet looks fabulous!!!

Wednesday: Avery had an appt with the Spinal Orthopedic Dr.  NOT GOOD :( :(   I knew his curve was bad (60%) but it was far worse than I thought.  Basically, his scoliosis (curve in his spine) is 90% and kyphosis(bending forward of his back) is 80%.  I just wanted to breakdown but I still thought there were options.  Silly me.  After hrs of absorbing the appt. it was clear that there are no options but to love our boy and continue to make him comfortable.  Since he is only 5 yrs old he would need growing rods which would require surgery every 6 months as he grows.  Not to mention his bone strength.  He is having a bone scan in two weeks which would tell us how soft his bones are.  I am totally expecting them to not be viable for any type of rods.  I know the Dr. knows that but doesn't want to tell me upfront.  I don't blame the guy. How do you tell someone that your son's spine is so bad and yet surgery just is not a reasonable option.  Just sucks all around.  Eventually he will run out of lung space and have issues with his heart.  Talk about a knife through your heart.  Just awful.

Thursday: a loong workday, gym and come home to Isaiah with a 102 fever (which is highly unusual) and Avery who has some type of abrasion on his eye.  Good lord!!! We keep Isaiah's fever under control and hope it stays away, meanwhile my pedi wants Avery to be seen by Opthomology to rule out a corneal abrasion the next day.  Ugh. This really sucks b/c I HAVE to work and see 15 pts. in Boston only got rush back at (hopefully) noon to get Avery afterschool and bring him back to Boston and then sit in traffic forever.  Time for the Superwoman Cape!!!!

Friday: Head to work get ALL 15 pts seen and out by noon, Awesome.!! Get Avery and sit in the drs. office for two hrs only to be diagnosed with an irritation of his eye.  So now we sit in traffic for 1.5 hrs and I have had it by this point and so has Avery.  The only highlight of my week was so go over one of new my friend's house and have her kids love me.  Her baby was all over me and it was exactly what I need after the week I had. Not to mention the great company, I truly believe you meet people at certain points in your life for a reason.  Her family is exactly what I need right now :)

Sat-Sunday: Avery's eye looks much better but Isaiah has continued to have fevers and just not feel well.  It's heartbreaking b/c he has been waking up at night crying with fevers.  This is so unusual and heartbreaking b/c he never cries or gets this sick.  I know what to do with Avery when he gets a fever but with Isaiah I feel like I have no clue.  My poor boo.  Hoping he is feeling better by tomorrow b/c he is breaking my heart.

So there you have it.  A week in review.  Now you can see why I get overwhelmed at times.  Adding to the craziness with the kids, my job is getting very demanding and I HAVE to work (wish I had an option but I don't)' so I havet to get it done.  Not many mom's work with one special kiddo let alone two.  I'm just hoping my Superwoman Cape keeps working for me.