Still busy working on the renovating the kitchen. If you know me, once I have an idea in mind I don't stop until it is completed. The stove came in and it is soooo nice. Never thought about a stove before but this one is something else. Countertops are ordered and will be in a couple of weeks. So we are getting there. I will post picture of the finished kitchen. I might have a before picture (I hope)

Back to medical stuff which I am sure you all are so eager to hear about. Just kidding.

Isaiah is doing great. We are going on a school trip to a play tomorrow. Can't wait to hang out with my boy. I will take pictures. I hope he does his usual cracking up laughing out loud. It just brings tears to your eyes. Yesterday my nurse brought her little dog that weights all of 2 lbs if that. Isaiah was just rolling all over cracking up at the dog in a skirt. Too cute.


Avery has been continuing to struggle with respiratory issues. I believe it has to do with the increase in his valium. We needed to increase for the spasms and pain but it decreases his whole system including his respiratory. So another catch 22. Ironically his neurologist called today and we are throwing some other med. options out there. It is really such a fine balance between comfort and other issues that meds can bring. He is still vomiting tons with meds. His gut is just horrible. Thank god for the TPN or we would be screwed.

Janessa is now obsessed with dogs. Poor kid swears we are getting her a bulldog so she can name her LuLu and dress her in clothes. LOL. You can all picture that in this already mad house. She says " It would be perfect for our family mama b/c they are fat and don't like to go out walking and we don't have the time to walk it" ....

Sounds like a perfect fit to the family.