Hey all...

I am pretty excited as my trip to Mexico is all booked. Woooohoooo. It is just enough time to get away to rejuvinate. We are going to have a blast.


The pallative team met with us for Isaiah and also discussed some of Avery. I have to say Isaiah was feeling good and sooo sweet. He was just rolling all over them and touching their hair and face. I am sure they fell in love with him, I mean how could you not :). They thought he was much too skinny and they we are going to get him hooked up with nutrition and a number of other dr. Ugh. But it really is time that he got alot more of the attention as Mr. Avery has totally monopolized it. LOL.

Avery is going to be coming off the valium as that was only meant to be temporary and will start on baclofen which is an anti-spasm med. It works in the same way valium does but meant to be more long term. If he does well on it, he may have a pump inserted into his spine to give him constant doses of the med. As we know his stomach does not digest meds well. We also talked about his increase in respiratory issues and they said it was expected with the valium and may still happen on the new med. So there is never an easy solution to things.


More exciting news though!!!!!!! My sister is coming with her kids on Friday and staying with us :) :). So it should be a great weekend. Can't wait to hold my baby neice again.