Saturday, February 21, 2009

I have been feeling VERY overwhelmed these days. As you can see I go through periods that I am fine and life is just going along and I am going with the flow of things and then there are times that I am thinking "How did I get here" and "Will it always be like this". There is just not enough time in the day. I feel like I have at least 3 fulltime jobs. My work, Janessa, the boys and all of their medical stuff. I am also a fulltime nurse case manager which is ridiculous sometimes. Then there is also running the household. Sometimes it is more than I can bare but what can I do, because I have no choice but to get up the next day and do the same thing.

Isaiah is better. I took him to the drs. on Friday in between work and they checked his blood and urine and everything else in between and nothing. We were there for almost 3 hrs. (unbelieveable) and of course it was "VIRAL". Man I hate that word. It basically means, we have no idea what it is and there is no medication for you. I also get so frustrated with our pedi. He has NO clue what to do with these boys. Everytime I ask him a question, he defers it to Children's Hospital. I feel like saying " Is there anything that you DO know?"

Avery is still vomitting almost daily with meds. which sucks. He gets so junky after. He is having intermittent desats at night and is up all night. We really do need to go through with this test this week. I am dreading it b/c it is NOT going to be pleasant. It is going to be awful in fact. I just hope that after making this decision that it yeilds us some important information. Always tough decisions with these guys. They changed the date to Weds. b/c pre-op flipped when they saw Avery's chart and wanted an ICU bed for him post-op. It is not post-op I am worried about but more the testing the next day. We will be in ICP which is the step down to ICU and they know Avery very well there so I feel much more comfortable.

Janessa is totally depressed b/c our friends moved into their new home today and of course took their dog with them. Luckily they only live 2 miles down the road. Janessa can still go for walks with Daisy. She was so great with the dog it was really cute. Maybe someday she will get one but I don't see one in the near future. She did say that she is going to put letters in the neighbors mailboxes asking to walk their dogs for money :).

3 comments:

Nena said...

Hello friend! Sorry things have been so exhausting lately. Sending you peace and light, Nena

Anonymous said...

Big Hugs Nicky....I'm sorry things have been overwhelming lately.

I hope thing settle down soon.

It feels like we have a role reversal going on.

Debbie

The Hodgedunmores said...

I'm so sorry. I can only begin to imagine how exhausted you must be. I have three children, a full time job, a husband who works long hours, and that's really taxing and tiring, so adding to that all the pressures of two children with such pressing and relentless health issues is such an incredible weight and challenge. i'm sure if you could spare the time to have a minor breakdown right now, you probably should. And I know that it's so difficult to delegate even the regular daily demands of a young family, let alone the specialized, nuanced ones that you have constantly. It has to be absolutely physically and emotionally exhausting. I know it sounds hollow, but if you can think of anything that would be helpful, please let me know. I think you guys are just over the boarder in New Hampshire, and I wonder if Janessa would like to come out with us sometimes when we're up there. We always have plenty of dogs in tow, and are usually visiting dog trainer friends when we're up there. Let me know if you think she might like this.
I wish you rest and energy, and helpful results from Avery's upcoming tests. Hopefully spring will help. It's almost here!

God bless, love Alison.

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