Wondering where we are........................................................................................................................................................................................................................................................
Home actually. Avery had a better day today. Just really convinced these are anxiety attacks for fear of being suctioned. My poor poor baby. He was a bit anxious today but my nurse was able to nip it in the bud. I am really thinking it is not his port although the dr. wants to get a Halt monitor which would look at his heart wave to see if there are irregularities especially since he got up to over 200 yesterday and as low at 80 within the hr. This would give them a 4 hr reading of his heart to see what it is doing. Suppose it can't hurt.
I am so bummed though, although Isaiah's wish was granted, we are having trouble with the zoning and the town. Sounds like they are pretty resistant to any changes in the zoning. This house has to be 7 ft. from all sides of the neighbors and it is on all sides except behind us. I mean are you serious. It is MAW. let's be real. We should find out in a few days. Please pray. It would make our summer life so much easier. We got this house so the boys could enjoy the outside with us and with Isaiah hating the heat so much this house would have been great for him. We could never afford to do this on our own. It just really stinks to be out at the pool with Janessa and the boys upstairs secluded with the nurses b/c their bodies cannot tolerate the heat. The other wish is fine (entertaining center) but this would have been great for him. I will let you all know what the verdict is but it doesn't look good.
Lately, I have been SOOOOO overwhelming tired. It is not like me at all. No motivation to do anything. So if you have called and I have not called back, please don't be offended. I know I am not pregnant and if I was, then someone is getting sued bigtime. LOL. Maybe things are just catching up with me. Although I am proud of myself as I just finished the "Pillars of the Earth" which was over 900pgs. Great read. Janessa is also really getting into reading which is good to see.
2 comments:
Glad Avery is better. Holter monitor sounds good to see what he's doing. Nicky, look back to see when Avery got the MMR & chickenpox vaccines which are given at 12 months, there have been articles written that some vaccines aggravate the mitachondria in these kids and MMR with autism. Avery started getting all these problems worsening symptoms at about 12-14 months of age when you moved.
I know these towms have all these rules with structures. Hope you can get the house for the boys. Get some sleep.
Say hi to everyone.
ES
Hey, I'm glad Avery did better last night. That's great.
I listened to your message again today, and realized that you'd asked me to mention the party to Kathleen as well as Tracy (the first time I thought you said you had mentioned it to Kathleen already). I'll pass on the info. tomorrow, although I don't know if they'll make it, as her C section is scheduled for the 15th, I think! Did you guys know they were expecting again?! Maybe a dip in the pool will be just what they need by that point!
So, I don't know how the zoning issues are decided where you live, or when the decision will take place, but if there's any way we can petition them, on your behalf, it seems like this should be something that should qualify for an exemption. I actually don't even know which town you are in (although I have your street address). I have a friend who works for a housing developer in Mass, and she may be able to make some suggestions as to how to increase your likelihood of a good outcome. It's such a great opportunity, and it would be such a stupid reason for it not to go ahead. Anyway, let me know what you think.
Also (last thing!) although I can't really imagine why you wouldn't be exhausted most of the time, I had something last week, I think it was a virus, that knocked me out for three or four days. It was wierd, 'cause I didn't really have any other cold symptoms, but my muscles and energy level felt like I had the flu. So if it's a different kind of tired, you might have that(a friend of ours had it a while ago too, we're not crazy!) The obvious are what you need, sleep, rest, quiet time.....all that good stuff!
Good luck with that!, and with the zoning board. Let me know if you want me to email them, call my friend etc,etc.
Sleep well, Alison.
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