Sunday, June 1, 2008

Things are about the same. Avery is still having what we can only describe at "panick attacks". Honestly, it is the most bizarre and upsetting thing. When he gets worked up, he gets junky and cannot get himself out of it. Despite what we are giving him to calm him down is not working for him. We don't know if it is anxiety b/c of pain or fear of being suctioned (which is horrible b/c he really needs it). He usually starts off his day pretty mild but by the time he gets up from his nap he is just a wreck and he then has trouble going to sleep. Lately he has not be falling asleep until at least 10pm. I really hope this is all related to the swelling from his tonsils and will go away soon b/c it is just aweful to see and worrisome.

Isaiah is going to be the BIG 6 on June 5th. Still cannot believe it. I think we will be taking him to see Kung Fu Panda at the IMAX. He will just LOVE IT. He also has his school trip to the zoo. Lord I hope he is healthy for it after all the fighting it took to get him to go.

I am so upset b/c one of my favorite websites has been down for at least a week and I feel so disconnected from the other moms which are such a support. Really hope they can get the site back up.

4 comments:

Anonymous said...

Hope Avery calms down. Maybe part of it is the pollen which is really bad this year. Paul is so bothered by it,he can't even go outside for a few mins. If you open the windows, it blows in. Evening seems to be bad too. Daren said on the way to work he sneezed 40 times, had to pull over to blow his nose. HR is working with me-getting pd for all the lunches & OT not pd for. But I have to look back over a yr. Time consuming-still on FMLA.
Once I get this done - will feel like another stress is accomplished. Paul has been so bad with the pollen his throat closes and can't swallow food. Only thing that works at that time is Benadryl.
Hugs to everyone.

Anonymous said...

I'm sorry Avery is still struggling. Jaiden was a good three weeks and I thought it was never going to end. I know that kids with tone issues generally do take longer. I hope that is all it is.

Happy early birthday to Isaiah. I hope he has a great day. I'm glad you won the fight over the zoo. He has every right to be there. Being parents of SN kids is exhausting.

The admin is working on P2P. There was a major server crash and they are rebuilding it. It will be back they are just not sure when.

Thinking about you and your family.

Debbie White
Ontario, Ca

Anonymous said...

it was great to see you friday night. i am reading the blog now and realize we didn't talk about any of these issues. How do you do it!! you are amazing. i am praying for avery. He deserves to feel good and you deserve to see him feel good. You have so many balls up in the air and you juggle them all and take care of all your kids. i am here to help in any way!!
love,
sonya

Anonymous said...

Hi Nicky! I love your blog!

I'm sorry Avery is having such a hard time. There is nothing worse than watching your child in distress.

You are an amazing mom. Thanks for sharing your beautiful family.

Happy birthday, Isaiah!!

Ellen (napless from P2P)

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