I know my posts have been few and far between and I apologize for that.  I feel like it's the same story different day.  To be honest, by the time I think of blogging I am already in bed.  The days just go by so fast and I have such little time.

Going back to Christmas.... Avery went to Children's for a slew of tests just prior to the weekend and thankfully everything had improved.  This means that the medication is working and he should not need surgery.  It was a huge weight lifted!!! We ended up having a great Xmas.  I swear Avery knew Santa was coming on Christmas Eve b/c he did not fall asleep until midnight. On Christmas morning he was sooo happy and it was such a blessing to have him home with us.  I really didn't need anything but my family home together.  Unfortunately Isaiah was not feeling well most of the day.  But it was Sunday so we pretty much banked that he would not be feeling well :(

Since have basically been working and running to the drs. with Avery for bloodwork, ultrasounds or some type of X-rays lately.  He is still not himself, although I don't know who that is anymore b/c as soon as we resolve one of his issues another is soon to follow.  Thankfully, his liver/gallbladder are looking much better and he is no longer yellow.  But of course, the insurance company is refusing to pay for this medication that has reversed these issues. What a pain!!!  As soon as his liver was starting to look better we started dealing with daily vomitting and crying due constipation.  Poor kid just does not catch a break :(   We have him on a new bowel regimen and I am praying that it works for him b/c it's so heartbreaking to see him so miserable.  After all, he is going to be going to school another day (he's up to 3 days now).  He is doing awesome there and we are trying to make the best of it for him.

Next week Janessa and I are going to Georgia to see my sister and her family.  We have not seen the kids in over a yr and are very excited. I have to say that I am nervous.  At this point of Avery's care, four days is a long time to be away from him.  I am confident in my nurses by Avery always has something up his sleeve.  I hope he doesn't this time.  It gets harder and harder to leave these guys :(  That's why we always purchase insurance b/c you never know when your gonna need it around here.

I guess that's it for now as I have to run to pick Janessa up for Girls Scouts!!!!!