It's been a long day

Avery has continued to spike fevers continuosly since last night. The highest today was 105(I about had a heart attack). He has had numerous infections and been septic twice and has never been that high. Adding to the fact that he has slept the entire day away. I still believe it's from the IVIG and finally have the drs. Convinced of the same bc his labs are reflecting it. Also bc his blood cultures are negative. At this point, if I don't have a plan in place for the infusions I will not do them anymore. He is clearly getting sicker rather than better with them. I have honestly not seen Avery this sick in a long time (it's scares me). There are just too many mito kids losing their lives lately and you have it constantly looming over you especially at times like this.

I am sure my little man will turn the corner in no time. He sure knows how to keep us on our toes though.