I am not sure if you can tell but Avery was full of smiles when Grammy and his sister came for a visit.  He was so happy!!!!

The vent has been a good break for him and they have actually been able to wean his settings a bit.  My personal opinion and I know it to be the truth is that he was so claustrophobic with the bipap on that he got himself so worked up and that is why he crashed.  He does have pneumonia but it seems to be resolving.  I definitely feel he will be able to come off the vent without us needing to make the decision to trach him.  This is not something that Rick and I want to do but if we have to we will.  I just think we need a better plan for him coming off the vent and whether that involves no bipap or a nose mask instead of a full face mask or just O2 then that is just what is going to be done.  Avery still have a long road ahead but this boy is tough as nail I tell ya.  He also seems happier on the vent b/c he can see you and he is not cut off from the world.  We have also been able to put his cochlear implant on him which opens up the world even more for him.  We will continue to take things one day at a time.  I just want my little boy back to the way he was before all of this.  I wanted to thank everyone you has helped us with food, taking care of Ness and Milo, listening to Rick and I  and also for the nurses taking good care of Isaiah at home.