I am going a bit stir crazy being stuck in the house these days. For one, the neverending snow is driving me bonkers and I have had a nurse on vacation for a bit. So I have been the nurse almost all week and am excited about going back to work this week. You literally do not leave the floor in the living room. I am either changes a diaper, giving meds or playing with the boys, it's a fulltime job with no pay. Although I am still very grateful for the good days Avery has continued to give us. He is not sleeping great at night again but I actually have a night nurse starting a couple of nights a week.

On another note. I have lots to think about with Mr. Avery. He will be 3 in May :( and I have to make decisions about schooling for him. He is a totally different kid than Isaiah was at this age and it was a no-brainer to send him to school. With Avery being so medically fragile, it is a different ball game. It can be much more difficult to get the services he needs at home rather than at school. I am inclined to keep him at home and fight for home services. It just breaks my heart that he should be going to preschool and I can't even do that for him. Having special needs kids is a CONSTANT grieving process for lost milestones.

Also I have been thinking of a Wish for him sooner rather than later b/c I am worried about his future prognosis. I would love to say let's take the family to Disney but I have panic attacks just thinking of it. Avery is just too unstable and it would be a total nightmare. Isaiah would love it like he did when he was 18mos but Avery is another kid. So I am up for any suggestions for his wish when he turns 3.

Thanks all for reading.

Please continue to pray for Samuel, things are looking a bit better. www.missyknight.blogspot.com