It was so good to get uninterrupted sleep at the hotel last night. I really think we are going to do this 2x a month. We were only 5 mins down the road which was nice too. So glad we were night home b/c apparently the boys were both up playing last night. Yikes.....

Avery had a pretty good weekend. He is still requiring night o2 and even some during naps. We are in to see the pulmonologist in the morning. I am bringing his bipap in b/c I think it needs adjustment b/c he is desatting while on it and requiring 4-5 liters of o2 to keep his sats above 95%. I will be interested to hear her thoughts compared to our last visit before the recent hospitalization and changes. I am sure it won't be earth shattering but I still like to hear her thoughts on things.

Hopefully the agency will start getting night nursing in, we just have to start rearranging the boys rooms to separate them b/c I don't want Isaiah woken up by the nurses and Rick and I would like to maintain our privacy. So we have some figuring out to do with the room. Luckily we have 4 bedrooms and a separate living area downstairs.

So nothing else too exciting these days.