Things are wonderfully quiet around here. Isaiah is now up to week 9 without a cycle. His longest ever in over 3 yrs. I am so happy. Avery is stable which is also great. I am nervous b/c Rick is leaving tomorrow for 4 days and this week is our 3week mark of being out of the hospital. We have not been home for more then 3 weeks since December. So I am alone if Avery gets sick this week. Pretty nerve wrecking but I am sure thing will be fine. You know what is really sad, When people ask you how things are going and we define it by how long we have been hospital-free. Honestly, Rick and I aren't asking for alot in life, just to be able to be home and lead somewhat of a family life.

Last night we went to dinner with some dear friends and they are going through a difficult time b/c one of their kids was recently diagnosed with diabetes. Many people feel they are afraid to burden us with their problems but it is total opposite of that. We feel grateful to be able to help people in similar situations. Often I get they questions "How do you guys do it and stay to postive". Really there is no magic answer but a few things come to mind. We have an amazing support system all around us, things could be so much worse and we are lucky to be able to provide a good stable home for our kids, and this is the life we were given and we have to make the best of it. It does us no good at all to be angry and so woe is us. That is just not our style. Now that is not to say that we don't have bad days b/c we are human and we do but we just pick ourselves back up and deal with the next day with a new perspective. For me, it is really good to be able to talk to be and help others. RIck and really coming out of his shell and being able to talk openly about the boys. We really hope to be able to help our friends through this time. They will get through it b/c they will.

Another difficult situation has come up that we have to make decisions about. A WILL, which in another family would not be as difficult but for ours it is especially hard. Who takes our kids "if" something happens to us. We have asked a couple whom we love. But lets face it, this is a major undertaking. HUGE. and alot to ask of someone who is just starting their own family. We are totally stumped b/c we want to make the right choice for our kids and the person(s) we pick. We have to make it legal. We have insurance policies but with special needs kids, the state to own them and they and Janessa will be left with nothing. SO this is a big deal but not many options. Again, just another glimpse of our world. Let's just pray that we live a very long live together.

Thanks for reading. Prayers are needed for Marlo and Jaiden right now. Their family really needs a spell of good health for these girls.