Can you believe it. Always waiting for the other shoe to drop. But am certainly enjoying it. Isaiah has gone his longest in three yrs. without a cycle. It has been 7 weeks. Wooohooo. I am so happy. I will be upset when if and when he has another one b/c there is always that glimmer of hope that he has outgrown it. I surely hope this is the case. This poor kid just suffers when he is in a cycle. It is just torturous to watch. I am really sad that my Isaiah is actually hit puberty. Booohooo. He has alot of hair on his genital area. He is not even 6 yet. So sad. I asked the endocrine dr. and he said this was not unusual with special needs kids. But certainly sad for mama.
Avery is doing pretty good. He has been home for 11 days. Woohooo. I am really feeling like this will be it. We have actually beat the hospitalizations. Do you know that since last May (his 1st b-day) the only month we were home was in November. That was our only month hospital free. What a rough yr. I really feel like it has aged me a few yrs. It has certainly taken it's toll on Avery. But I do feel pretty confident that we will have a good summer and finally enjoy our home and pool.
Good news is, Our lift for the boys is in and we will get in together soon. So no more carrying Mr. Isaiah up and down all those flights of stairs. He will have his own elevator. This will also be great for the pool. It was so hard to carry him up and down the stairs for the pool. Now we can send him and Avery down in their wheelchairs to the pool. It will help our backs to say the least.
Janessa gets to meet the social worker next week and she is still pretty excited about that. She is really having a dilemma with an ex-friend in the neighborhood. She really does not like the girl at all and sees her everywhere. Janessa doesn't want to go outside b/c the girl is always hounding her about being her friend. This is a new obession for Janessa. Also, one of my nurses straightened her hair. She looks gorgeous of course but is totally obessesed with it being straight. She just kills me. Just love her.
Daddy is going away next week which is well deserved and I am excited for him. Just a bit nervous b/c Avery has not gone this long without being in the hospital and I am on my own if it does happen. Let's just pray that little man stays healthy. Although he does seem to know just when to go in the hospital.
Me, okay, I am back on my weight loss kick. My butt and thighs just are not fitting into my clothes anymore and it is time to hit the gym and eat healthy for a few weeks at least. Then I will be right back in the cycle next yr. Us women are all alike.
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