Not such a good day today for Avery. He started off his day screaming straight for 45 mins at 7am (felt like I was back in the newborn days). Well, when he cries, he gets junky and drops his sats which means I have to do alot of work to clear him out (chest pt, nebs. cough assist and suctioning) all at 7 am. All while getting Isaiah ready for school including bath, meds, dressed, teeth and his neb and into his wheelchair. While also getting Janessa's hair done and her off to school. While getting myself dressed and ready with work schedule and lunch ready. Did I mention that this is a pretty morning. My nurse does not get to the house until 8am and by then everything is done. So since I had such a crazy day, I had a short work schedule today which means done by 11:30 am Hehehe. Which means I got a Jennifer Weiner book "Good in Bed" and read the whole darn thing at the bookstore today. I was so proud of myself. So I brought another one of her latest novel.

Avery had a very fussy day for the nurse today and kept it up until bedtime. I guess, we can't have everything perfect. He required more methadone today. This poor kid, I just cannot imagine what degree of pain he is in. I have to think of a b-day gift for my little man. Although he does get to see an Ear, Nose, and Throat dr. for his birthday b/c of his chronic congestion, we are concerned it is related to his sinuses or adenoids. I will let you all know. Certainly hope it is not surgery related.