We Are Home

Wooohooo. Avery got home late today. Praying that we have finally broke this awful hospitalization streak. Can you believe it's been about 8 weeks on/off. We have not been home more than 6 days without a hospitalization in 8 weeks. This poor baby has literally been through hell and back. He has so many black and blues throughout his entire body. He has lost a pound which for him is alot. It took us 9 months to get that pound and now we are starting all over again. He is 17 months today weighing a whomping 17 pounds.

So he has not port or central line access b/c of the blood clot. So we are back to worrying about him being dehydrated. But it is about quality of life. I just cannot put this baby through another surgery and hell that we just dealt with. He now has to get 2 shots a day of a blood thinner for 3 months to prevent future clots. I practiced all day today and thought I could do it but when the time came, I just could not do it. Rick had to do it. It just breaks my heart.

He also has c-diff (remember I talked about this before) it is an infection in his bowels that is very hard to clear up. Causing tons of the nastiest poop you can ever imagine. So now I am worried he will not get his cochear implant next month. So still lots of worries.

Now lets talk positives. Enough of the negativity.

Rick has the best group of people working with him. A couple of teachers from his work decided to get together and make a basket b/c they knew we had been struggling with Avery being in the hospital so much. Well this quickly turned into the most overwhelming generosity you can imagine. We are just so very lucky. We have such great supports around us and many people praying for us. This is what helps us through all this madness.

Another friend's friend came up with an idea that I think is great on her blog and that is post a few positive things at the end of the post. Well here goes.

1. I am sooo happy to be home as an entire family.

2. Very grateful my little man is such a fighter and has overcome so much in the last few weeks.

3. Grateful for the great jobs Rick and I have.

4. SO happy, Isaiah is in such a great school with people who love and care for him and he is happy.

5. Excited about my baby girl turning 7 in a few days.

6. Grateful for meeting another mom who has had similar experiences and that she helped me see that I have a great life and things could be so much worse.

7. So happy about Rick's cousins Melanie just had her first baby boy and I can't wait to meet him and also excited about meeting my cousin Jaime's baby.

So overall, their are many things to smile about. We are very lucky people. BUt I do realize that I am still able to feel sad and vent when I need to.

Thanks for reading this long vent. Hope all is well with everyone. Much love