Avery is doing well on TPN. He seems happy and labs all seem to be fine. Unfortunately we ar going to he there for a while. The surgeons still have to make a decision on the j procedure and he will still need a port and a muscle biopsy. Hopefully this can all be done midweek. But then recovery and slowly start feeding through the j. So many prayers are needed for little man.
Rick takes the weekend shifts and I do the weekdays. It is such a tough schedule because Rick and I are never together during these hospitalizations. It's more like a relay race. It can be so tiring and taxing on family life as you can imagine especially since we have spend the last the weeks in the hospital and almost 2 a month for the last 3 months there.
Janessa's first day of school is this week and I will be coming home to send her off. I cannot believe my baby girl is going to the first grade. She is just such a trooper through all of this but I often do worry about how she is coping. I have many talks with her but still wonder what her little brain is thinking.
Isaiah has been feeling great. He is getting so much one-one attention from the nurses thankfully and is just eating it all up. I think he is really getting spoiled. He starts school next week and I am excited for him.
I will not be posting for a few days but please keep our family in you thoughts and prayers.
HAPPY BIRTHDAY TO ME TOMORROW !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
3 comments:
Hope your Birthday was good under the circumstances. Avery's in my prayers. Daren's having the time of his life so far in College. Like always-hanging around with more girls than guys. He went to the beach in Newport. I applied to another job at the Women's Center; sounds better than the Pedi Clinic, which is mostly tel. triage which I really don't like. Have a week that has some blessings.
Glad you had a good birthday. And I hope he continues to do well on TPN, or a J tube if they can. {{hugs}}
Hey girl!! Just found your blog and thought I would sign for ya! Hope you are hanging in there in Club Med and they get that cutie pie sorted out and home really soon. Here is the boys' page in case you want to look us up... www3.caringbridge.org/tx/nicholasp . HUGE hugs...thihnking of you guys...
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