So moving day is quickly approaching. We are moving out of our home on Tues. am and will be staying overnight at my in-laws then moving the next morning. Things are going to be crazy b/c the boys have some big appts. tomorrow. They are seeing CCS which is a Case Management team for complex kids. Hopefully it will bring things together for us and save me a little work. They help with coordinating all of the boys services. Get all the drs. on the same page. We will go over ever body system and determine what appts. are needed. Lord knows I might as well stop working b/c I know they need a ton. They are also seeing the GI drs. I know Avery still has not gained which is the issue along with his continued vomitting. I will speak to them about the cisipride for him. Isaiah is now trying a new med. for him (topramax) this was the last big gun to help stop the migranes(CVS). HIs neuro. really did not want to put him on it b/c of possible liver issues with this med. It is really our last ditch effort for him. Please pray that all goes well for these guys and we get some answers or direction.
I will post pictures of the new house this week. Can't wait. So excited. We all are.
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