I know it's been a long while, as my mother in law keeps reminding me :)

Since I last blogged we couldn't figure out why Avery was so sedated.  Well the mystery has been solved!!! Unfortunately, the pharmacy gave him baclofen instead of clonodine on top of the baclofen he was already getting.  The baclofen is a muscle relaxer.  So it was a bit too relaxed.  It was definitely scary but I'm glad we figured it out and he is ok.  This boy is just so unbelievably resilient.  Since then he has been doing ok.  At this point he is supposed to be going to school 3 days a week but between drs appts and sickness he may only still make 2 days.  I'm just thrilled that he is even at the point of going to school this much b/c he loves it so much.

Isaiah continues to struggle with his cycles, he had a pretty bad one on Sunday :( but other than that he is great.  He is getting so strong which is amazing considering his diagnosis.  Janessa is doing her thing.  She is just so busy between girls scouts, school play and student council that it seems like we hardly see her.  Also she is already at the age of not liking her parents and wanting to be with her friends all the time :( so sad.

I have decided to start working 4 days a week b/c I was basically doing it but without the benefits. Although it's a big commitment given my crazy life, I think it is worth it.  I always figure out a way to work it out.  Thankfully I'm still seeing my counselor :)