We did make it home on Friday early afternoon but man did I need a shot of something after that caride home!!!! At this point, I can no longer drive Avery to and from the hospital alone. He is just too sick. Let's face it, what kid comes home straight from ICU in baseline condition. Umm, not my kid. He was a plain ole "hot mess". Janessa even commented an hr into our craziness of settling him in home " I don't think he was ready to come home mom". But at this point we know Avery's new baseline after each hospitalization is going to be "sicker". But still we choose to take him home because we know that is where he is the happiest. No matter how rough his day is at home, when you put him in his bed he has this smile that confirms where he wants to be.
That being said, the past few days have been an ICU treatment facility in the Nault household. Avery's oxygen levels have dropped so low that even at Children's ICU they would be nervous. For now we have been able to stabilize him by drawing labs, giving extra IV fluids and measuring inputs/outputs. These are all things that are completely foreign to most people but have become a normal way to keep our boy at home. Sure he makes my heart race while we are doing these crazy interventions, all the while Isaiah has gotten himself stuck in some obscure place and the dog is eating one of my towels while Janessa is asking me to do something for her. But it still beats sitting in a hospital waiting for someone to suction your child and eating the same food everyday and looking forward to rounds and young drs. Giving you permission to go home.
So hopefully we will be able to rough this storm at home with the help of drs and nurses from Children's bc in the end that is where a family should be!!!!
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