Monday, April 25, 2011

Yes, I'm still here :)

By now I am sure you have all stopped checking the blog b/c my updates are so infrequent.  I guess after 5 yrs. of blogging, it's nice to take a break every once in awhile.  It's weird b/c if I run into someone that I have not seen in awhile, I start giving them a recap on our life but they already know it b/c they read the blog.  So sometimes it's nice to not have my life so public.  After all, there is nothing too crazy going on around here.

From a medical standpoint, Isaiah has had a really rough April.  He did this last yr and it ultimately landed him inpatient for some answers.  So at this point I am thinking April is typically going to be a bad month for him.  He basically spent his entire spring break retching his guts out.  Poor kid.  I honestly don't even know what to do when he is so bad like this.  We have basically tried everything over the past 6 yrs and sometimes he is better and others not so much.  This unfortunately is his cross to bear with this horrible disease.  It is just so hard to see him when he is like this though.  I cannot imagine feeling the way he does. But the minute he feels better, he is back to crazy octopus boy.  He has really mastered pulling out Avery's j tube of the past few wks.  You cannot leave him with Avery for even a minute when he is feeling good.  Such a typical brother :)

Avery has lost yet another tooth.  This now leaves him with four missing from the bottom and his two top ones.  Yet another sad sign my boy is growing up :(  He has been struggling for the past week and a half with respiratory issues and low grade fevers.  We are all waiting for the other shoe to drop and I am thinking that will be around his birthday next Monday.  We all know how Avery likes these little holiday's inpatient.  Unless he decides to get better on his own.  He is such a trooper and has really been holding his own, I just don't know how long it can last.

With all this me and my friend Debbie have been planning to go to Florida next week with Janessa and her son.  It just seems like the deck has been stacked against us, more so her :(  Her daughter Jaiden has been in/out of the hospital for the past few weeks with some serious issues.  They really do need a break and I am so sad for them.  I know all too well how it is to be back and forth inpatient and have other kids at home including another special needs child with just as many health issues.  It is still up in the air right now with our kiddos and wondering what path they will take over the next week.  If she is unable to go then Rick will go and that is given that Avery stays well.  So I guess we will see.

I have also been dealing with getting a handicapped accessible van for the boys.  Such a HUGE undertaking financially.  My van still has another yr on it so I decided that I will pay it off then get the van.  I just don't want to have these crazy high payments and still need another vehicle to drive to work. So for now it can wait another yr. 

Other than that I have been busy getting myself into shape and it feels really good.  I need to keep myself healthy and feeling good, otherwise this crazy household will just be more crazy.  Rick and I are even considering doing a mini sprint triathlon.  Well I am trying to convince him and myself :)  Guess we will see.....

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