I am feeling a bit "couped up" this weekend.  I am glad I had such a great time in Vegas b/c the next week I knew I would be housebound.  I tell ya, that is one of the worse things about life with 2 special needs kids.  I have never been the type to stay at home but I have no choice when the weather is warm and I have no nursing.  The boys just DON'T like the heat at all.  Plus I don't even know how I would get the two of them out of the house by myself and do something enjoyable.  I would definetly need some ativan for myself to do it.  LOL.  These guys are getting big and so are their wheelchairs and it is just alot of work.  So again, I am soooo grateful to have nursing b/c I just don't know how I would do it.  It surely takes a village to rasie these boys.

Not to mention, Avery has been struggling respiratory wise for some time.  I guess he struggled while I was away but everyone kept it under wraps (thankfully).  He has been requiring alot of O2 at night, bipap and tons of suctioning.  So I was nervous going into the weekend by myself b/c frankly it is alot of work.  Luckily, I have managed him pretty well and he is stable.  Although he is certainly spoiled when I am here.  Little man would be perfectly happy if I held him the entire weekend, meanwhile I have Isaiah trying to pull out all his tubes, UGH.  It can be very very busy here.  I am grateful to have nursing tomorrow, Phewww.

I am also excited to say that Ness and I are going to Canada on Thurs.  You know my friend that I often ask for prayers for her girls, well we are finally going to meet the girls :)  I am so happy b/c I have known her a long time.  She came to visit us two years ago and it has just been so crazy between our 4 special needs kids and hospitals that I am just now getting the chance to visit.  We are hoping all four kids can behave for 3 days so we can enjoy our visit.  I mean that is not alot of time to ask for in a yr. right?   Also, I will be visiting another mito mom and her family that I met at a mito conference a couple of years ago.  Janessa is sooo excited to leave the country, lol.  It is going to be a great mommy/daughter trip.  So we could use some positive thoughts that all kids behave.  Thanks