Sunday, November 8, 2009

Hanging on By a Thread

Literally....

Avery did not have a good day at all respiratory wise. He spent most of the day getting suctioned and was very anxious over. So by the time bedtime comes he is totally crashing which means he has lost most of his tone and ability to move air well. I have tried bipap the last two night and he is desatting over it. The settings are preprogrammed so he is needing more than the machine can give him right now. So he is on the 4 liters of oxygen which is high for him and the concentrator does not go beyond 5 liters. So these are definetly not good signs.

Tomorrow could go either way. I am seeing the pulm. dr. in the morning and he will either send me to the ER to be admitted or hopefully start IV abx and do a sputom culture. Somehow I think the first scenerio is likely, thus why my bags are already packed. I am suspecting that he is developing pseudomonas in his lungs as typical for him. But we really need to come up with a plan b/c this is only 2wk after ending his last IV antibiotics which would cover him for this and only 1 wk after ending his medicated nebulizer which is every other month. It totally sucks as we will only have been out of the hospital for 2 wks.

So I will let you know what happens. Im so hoping he can go home b/c his chances of getting sick with something else is likely when he is going inpatient.

18 comments:

Anonymous said...

just letting you know I am thinking of you all...so much love your way.

Christine Lackey and Family!!!

The Hodgedunmores said...

Hope it goes OK. Good luck.
God Bless.

xoxoxo

Anonymous said...

Sending Avery prayers
ES

Anonymous said...
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