Sunday, November 22, 2009

Family Update

We will start with Avery as he always seems to be the topic at hand. LOL. He is still struggling with feeds but we have decided to keep him at 15cc p/h and shut him off as needed. I just had to start the process all over again. He is having more output out of his g-tube (stomach that we drain) so we have to keep watch for hydration. And he is back to vomiting with meds again. These are all signs that his gut is not tolerating much but we will continue to plug away slowly at it.

Isaiah, we he started a cycle today which is nothing new. But we were having some issues with his school not doing what they should be doing for him. You all know Rick and I are like bulldogs when it comes to our kids. Like Rick says "they will get everything they are entitled to if we can help it" One of the biggest issues with his dynovox (communication device) which our insurance company paid ALOT of money for and is his sole way of communicating has NOT been used as often as it should be. So Rick attended a meeting with the school on frid and I am confident that ALL issues will be worked out.

Janessa is such a good kid. Got all straight As and the teacher said she is such a respectful and helpful good kid. YAY!!! So proud of her.

Rick, we basketball season starts next week and he is pretty excited. Life will be plenty busy then for us all.

Me, well I went for a complete physical and was a bit shocked to learned that I had to have a few tests scheduled for myself. I like to think I am a pretty healthy person and I am but... I have a pretty big murmur so a ECHO was scheduled for me and the dr. also found a lump on my breast and I am pretty confident and so is she that it is a cyst. But she scheduled me for an ultrasound and a mammogram. I am sure it all will be fine but of course it gets you thinking. I sure better get these done before Obama decides to make it a law that you cannot get a mammo until age 50. LOl

So the usual craziness around here but nothing too worrisome.

2 comments:

The Hodgedunmores said...

Good luck with the tests. That's pretty scary. You guys sure do have a lot of constant reminders about the fragility of life. I'm so sorry for your friends. I can only begin to imagine their heartache, and loss. I keep you all be in my prayers.
With love oxoxox.

Anonymous said...

Nicky,
Stay away from caffeine for awhile to see if cyst disappears. Drink decaff coffee. I know you like your coffee but it worked for me. Look up l-glutamine by Nutri-west.com for the intestine. Recommended for us by the chiro that does kinesiology with our history of the colon.
ES

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