Happy 9th Birthday Janessa

Where does the time go??? I feel like it was just recently that baby Nessa was crying b/c she did not want to take the picture on the horse and now look at her practically grown with her friends :(

She certainly had a great long birthday weekend with lots of friends and dinners, and lots of presents. She sure is a lucky girl. We are of course guilty of spoiling her b/c it is easy to b/c we can only spoil the boys with our love and attention. Sometimes we have to be careful with spoiling Ness b/c it can surely backfire on us. But she is a great kid.

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On the medical front of things:

My poor Zay Zay has been suffering more and more from these horrible migranes. He spent his entire weekend in misery. His cycles are now happening at least once a week and I am beyond frustrated for him b/c they have gotten so much more intense. I am at my wits end b/c it is just not fair. Totally sucks to have to see him suffer like this. It has gotten to the point to the meds we use to abort (stop) the retching aren't even working so he continues to retch for hr. on end. He has a well visit with his pedi. on Friday and I really want to get on him about what we can do to help Isaiah with this.

Avery continues to do well these days. Last night he actually slept through the night for what seems to be the first time in yrs. Naw probably months but it is so good to wake and in the am and realize that you did not automatically jump out of bed 50x all the while hubby is snorning away :) He sort of had an off day today and he is coming up on a month from our last admission so I will not be celebrating b/c we know where that landed me the last time. LOL

Also some more interesting news on the whole genetics thing with the boys mutation. My genetics dr. called me this sat. sounding pretty excited that they seem to be narrowing down more specifically the type of mutation the boys have. So far they have not found it in Janessa or myself and Rick had not had a chance to get tested but the lab in Houston TX is very anxious to get Rick's tests done. I guess they have NEVER seen the type of mutation in males ever and it is a big deal. It is quite complicated and I don't even begin to understand it at all but my hope it that it not only helps my family but others to be identified.

Well that is it for now. I am excited to only be working 3 days this wk. WOOOOHOOO