We had a quiet weekend which is always wonderful, except keeping up with Mr. wildman himself, Isaiah. I have to post some pictures. The boy literally rolls over Avery, kicks him in the face and pulls at his tube. You cannot leave him for one minute. Kid surely needs some Ritalin, LOL. He is either retching and laying there like a bump on a log or into everything. But I love it b/c he has such a personality, just like any other kid.
Avery has not rolled again but I am sure will be doing it consistently soon. He had a great weekend but both him and Isaiah are having issues with their bellies. Avery is refluxing tons and gets really gaggy. New thing for him. Isaiah retched on Friday and was good all weekend, then started up again tonight.
But with all of this craziness, I am sooooo happy that we can handle it all at HOME. I know alot of kids that have been in the hospital suffering with many issues and it just saddens me for the families. I know what it is like and surely don't want to be there again. We are so blessed for the time that we get to be home. I feel in my heart that Avery has made a turn around toward stability. At least that is what I would live to believe. At this point we do such a good job keeping him home and I really hope it continues. I mean I don't mind being in the hospital for a short 2 day stay but that is about it.
I just feel that Avery is at home where he needs to be.
So please say a prayer for all the families that are in the hospital with there little ones b/c there are so many of them. Especially for my friend Debbie, she needs lots of hugs and prayers.
www.caringbridge.org/visit/jaidenandmarlowhite
2 comments:
God bless you guys, and especially Debbie and her family. Here's to time at home with our kids. There's nothing like it.
Love Alison xoxoxo
I follow your blog pretty regularly. I am a fellow Parent2parent mom...not sure if you recognize me from there(knzmom). My daughter also has mito.
Lots of prayers go out to the families that are in the hospital! Lots of prayers to those that are home and can stay home too!
if you check out my blog I wanted to pass along an award to you.
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