So yesterday was really as bad as I thought it would be. Just REALLY Really sad. This kid was just such a great kid and it was evident just by the line that was a 2 hr wait. The family was there from 2-at least 9:30 with the longest lines. He was buried in his basketball uniform which was so heartbreaking. He just LOVED basketball and my husband. He wrote this essay for his college apps which was all about the basketball team. I just balled when I read it. I hope to post it soon. You will get to see what an amazing kid he was. Rick really had a hard time. I just worry about him, his team and his family.

Isaiah is back in another spell. As you probably may notice, his cycles are getting closer and worse. He is not on any meds. b/c we have tried them for the past yr. and have not seen a difference but I am afraid we are back to the drawing board. We have got to find something that works. My poor kid is just suffering with these spells. I wish I could post a video of how horrifying it is but trust me, you would not want to see it. Outside of his spells, he is sooo happy. but during, it's like he is in the worse pain and there is nothing you can do about it. Others may say to bring him in to the hospital everytime and sedate him. But with our life it is just not possible. Hmmm, let's see, we still have another mitol kiddo who is high need and Janessa. There just has to be something that is going to work for him. We have some appts. coming up and I am really going to get on them about this. I will hospitalize him for his next spell if I am not getting anywhere just so they can see first hand BUT they need to do something to maintain his care at home. KWIM?? Am I making any sense??? Probably not!!! Just feel like I am in a trance of sadness this week.