My posts are few and far between these days. I think because Avery has been in the hospital so frequently, when he comes home I just want to get back to our regular routine. I feel like I live, breathe, and eat the medical life and it's just too much. In fact since his last hospitalization, I have made it clear that we are simplifying Avery's care. If specialists want to see him then they can do it while he is inpatient. I am really trying to limit the amount of trips we take into Boston. I'm lucky to have a pediatrician that is will to take over most of Avery's medical decisions b/c his plan of care is spot on with mine. We want him to spend as much time doing the things that he likes, ie school. Avery just really enjoys being there and the kids love him too. He has been doing great since he has been home but his labs aren't looking so hot. His liver numbers are still high and we think he could be having gallstones. A couple of months ago he was taken off a medication which would prevent this. Because he get lipids (fats) in his TPN daily, it can really do a number on your liver and gallbladder. So he is getting an ultrasound on Monday to see how & what his liver is doing. Hopefully it's as simple as restarting the medication. He doesn't seem to be in pain which I would expect if he had gallstones. I'm hoping it's just some sludging of his gallbladder which is a simple solution. Otherwise Avery is happy and doing well.

Isaiah has FINALLY returned to his baseline. Poor kid was sick with a cough for a cowpoke of weeks and then had a period of daily retching. I just hate to see him whiny and miserable bc he's usually such a happy kid. Janessa has been busy as ever between girl scouts, drama, and student counsel meetings. She recently had a teacher conference and I'm so pround of the girl she has grown to be. She made the high honors list and even got a card sent by her teacher praising her for being such a great kid and an asset to his classroom. Just makes my heart smile.

I started counseling a few weeks ago and it's just what I needed. I look forward to going. It really helps me get through my week bc as you can see there is never a dull moment in my life. Superwoman I am NOT, I'm just a mom, wife, and a woman trying to get through the day of this difficult life.