So this pretty much describes how Avery has been feeling lately. LOL

This is one of my favorite faces that he makes when he is not sure what you are going to him.  The funny thing about it now, is that since he is missing his two bottom teeth his little tongue sticks out in between them. 

He is kinda all over the map.  One day we think his tummy is hurting him so we have started gas drops (although not sure it makes much of a difference).  Another day he is very junky, requiring lots of suctioning and O2. Then other days you just don't have a clue what is going on with him.  He has been running low grade temps (99.5-100.6), nothing concerning but we keep waiting for the big temp to appear.  This is usually his MO before the **** hits the fan.   Although I have been saying for a couple of wks now that he is not right but he seems to recover on his own.  I'm actually pretty impressed with how long we have been home for (8wks).  I am totally whispering that though :)  We have at least made some strides in the constipation area which makes a big difference.  I started adding a heaping dose of miralax to the 80ccs of formula he gets a day.  Typically you need a lot of fluids with it and that was always the problem.  Somehow it is working for him so I am grateful for that.

The Nault's are moving forward with the Disney trip.  YAY!!!!!The volunteer has submitted the paperwork and we are hoping to get the nursing.  Isaiah is still an issue on the airplane but we will somehow get that figured out.  We are planning to go the end of Oct. or early Nov.  They ask you to pick 3 weeks and they will let us know which one was booked.  It is for 6 nights and 7 days.  Yowza, it's gonna be long but I hear that we will love every minute of it.  Although in our case, it will be filled with lots of drama and stories, lol.  It is going to be good for everybody, especially Janessa.

I have started a new little project/job!!! I know, like how do I even have time, right??? Actually it is something that I think I am going to be really good at.  It involves talking to parents of chronically ill kids and coping skills.  Right up my alley, huh!!!.  And I am a natural chatta box.  Ha ha... Honestly, I have been blessed with so much in my life despite the cards we have been dealt.  I have learned to become such a great advocate for my kids in a respectful manner and I want to help other families that don't have the resources to do that.  I'm pretty excited about it :)