It has been an overwhelming few days but there is NOTHING like hearing giggles from the boys to take the stress of the days away :)

I feel like I have had the same suitcase packed in my car for the past few weeks.  Avery constantly has you on your toes.  His respiratory status can go from critical to totally clear within a few hrs.  I honestly don't know what is causing him to have so many secretions but when he does he is a total mess.  Last night was one of those times.  I just could not get his sats up no matter how much suctioning and chest pt I did.  Your heart starts racing like crazy.  I mean you have this child's life in your hands and the next move you make can decide a lot.  Luckily, the interventions I tried worked and he was finally able to settle on 3 liters of O2.  Not that 3 liters is good but it is better than when I had him on bipap and he was sitting at 79-82%. 

I often wonder if I am avoiding the inevitable in not going to the hospital.  But then again he can go from near death's door to giggling as if nothing ever happened.  Once he settled in on the O2 last night he had a good night and woke up a bit junky today but had a great day.  Go figure.  Meanwhile I called the dr. that came out two wks ago and he called in a steroids. Don't know if the steroids already kicked in or it's just Avery but he is not on O2 or bipap for the first time in a long time.  So hopefully he can kick whatever is going through and I can finally unpack my suitcase.

During this craziness last night, the Metabolism dr. called me to let me know that he is just preparing the boys presentation for Sat. Mito Symposium.  He wanted to know if I could do a Power Point presentation on the boys.  To which I replied "sure, no problem".  I then get off the phone and say "WTH" did I just do.  I have not done Power Point since my thesis in grad school in over 17 yrs.  I decide to just jump into it and wing it.  Well then Rick comes home and looks at what I have come up with and it surely is not a Power Point presentation.  It looks more like an essay slide show.  Ha ha ha.  So again, he saves the day and helped me with a really nice setup.  I now can say that I am updated on Power Point.  Thanks hun :)

Definitely a little nervous but once I start running my mouth I am sure it will be fine.  I am hoping to keep Avery out of the hospital b.c I have some MAJOR work stuff going on.  I have over 30 hearing aid to dispense in the next few wks. and have to get it done before my surgery.  No wonder why I am stressed!!!!