Since Avery has been home he has been struggling both respiratory wise and with some unknown pain issues. He gets very anxious when he has alot of secretions and yet hates to be suctioned. He has not been sleeping well at all since coming home. Avery is seeing the GI dr. on thurs and most definetly has to have labs done. His color has been off at times and I am worried that the new TPN changes is increasing his lactate, especially with his change in behavior.
On the plus side, his physical therapist brought by a special needs type of walker. I was so proud of little man b/c even though he was in pain, he managed to pull himself together to move in this new device. Of course he is always so happy to get praise so he was all for it.
Isaiah has been much the same. He has been playing the Wii alot lately and thoroughly enjoying it.


2 comments:
So nice to see both boys happy with their new devices!
Hope you can get answers about Avery.
ES
Avery looks amazing in his walker. Isiah looks like he loves the WII.
Nancy
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