Friday, April 17, 2009

Think we are FINALLY seeing some relief for Mr. Avery. Valium is definetly his drug of choice. He is starting to relax a little more. It is so good to see the real Avery and oh what a joy. I forget how spoiled he is when he is feeling better. He is so cute. He gets the pouty lip when he thinks you are going to pick him up but don't. So at this point, we are not going to allow the team to make any changes unless it is to increase the valium when we see he is getting uncomfortable again. We just need to have longer pain free periods. Let's hope it lasts.

Some exciting news for Isaiah. Avery's early intervention physical therapist will hopefully be both boys therapist. Once he starts up with Isaiah we are going to get him into the clinic for a TRICYCLE fitting. Which basically means there is a program that fits special kids with a tricycle suitable for them and then a fundraiser is done to get it paid for. This will be so great for Isaiah. I can just picture us chasing after the little stinker down the street now :) We are already doing it in the house so I can only imagine once he gets the hang of the bike. I will give you all details as things come about.

It's school vacation for Ness so I have taken a few days out of work so we can do some things together. Can only imagine what she has planned for us. Better check the wallet first. LOL

I will be doing it alone for a few days as I don't have nurses over the weekend and it is Rick's turn to get away. So it shall be an interesting weekend. I am hoping to take the boys to the movies.

So things are all good right now and we have been hospital free for a month. Although I should not be saying that out loud, right. But this is typically Avery's best time of the yr.

2 comments:

Anonymous said...

I am glad to hear things are better. I ran into Rick's mom when I was visiting LHS. I got to hear about her/Janessa's dog. Very cute! Have a great vacation with the kids. Hopefully the weather will cooperate!!

Love,
KK :)

Anonymous said...

Glad things are going well.
ES

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